Hi JC, your site is simply EXCELLENT..
But it deserves more attention and advertisement among medical professionals…
Because your efforts must be fruitful and usefull..
Actually i am looking to start a site on pulmonology and i look forward for your guidance on how to start..
Once again congratulations on your efforts..
Your site is the first I’ve been able to find that remotely relates to my grandson’s condition. We are desperate to find help from someone that can help us better understand and ultimately help my grandson.
He is 22 months old; diagnosed at birth with
– TOF with APV (with obstructive airway
issues)
– Dextrocardia
– 22q13.3 deletion syndrome
He’s had 2 open-heart surgeries with more to follow (to replace pulmonary valve)
– 1st surgery was to put in a pulmonary
valve and repair a hole in his heart that
went from one chamber to the other. They
did something to relieve airway
obstruction. He was aspirating to they put
in a G-J tube to increase feeds/administer
meds.
– 2nd surgery was to replace pulmonary
valve (was leaking); repair (2nd time)
abnormal branching pulmonary artery
compressing bronchi.
Docs are trying but we can tell they’ve not come across a case like him before. They call him a “textbookcase”. He now vomits all the time. We give hima diretic to reduce water retention which causes his potassium levels to flucuate which in turn requires him to then be given potassium.
Poor baby has been through a lot. We search in hope to find a fix; at a minimum, improve his quality of life. At the very least, we’d like to better understand the combined anomolies in hopes to serve as a better advocate for him.
#1 by Dr.Jaffar Basheer at October 22nd, 2009
| Quote
Hi JC, your site is simply EXCELLENT..
But it deserves more attention and advertisement among medical professionals…
Because your efforts must be fruitful and usefull..
Actually i am looking to start a site on pulmonology and i look forward for your guidance on how to start..
Once again congratulations on your efforts..
#2 by Dr. Johnson Francis at November 5th, 2009
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I agree fully with Dr. Jaffer Basheer. Your site is really excellent and needs more attention from medical professionals.
Let us hope that Dr. Jaffer will start his pulmonology site soon and link up with Heart Pearls!
#3 by ecardio at November 6th, 2009
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Hi doc!
I’m a regular follower of your site, it’s very useful for me as a cardiology resident in Iran.
All the best.
#4 by Mary Valdez at December 24th, 2009
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Dr. Thejus,
Your site is the first I’ve been able to find that remotely relates to my grandson’s condition. We are desperate to find help from someone that can help us better understand and ultimately help my grandson.
He is 22 months old; diagnosed at birth with
– TOF with APV (with obstructive airway
issues)
– Dextrocardia
– 22q13.3 deletion syndrome
He’s had 2 open-heart surgeries with more to follow (to replace pulmonary valve)
– 1st surgery was to put in a pulmonary
valve and repair a hole in his heart that
went from one chamber to the other. They
did something to relieve airway
obstruction. He was aspirating to they put
in a G-J tube to increase feeds/administer
meds.
– 2nd surgery was to replace pulmonary
valve (was leaking); repair (2nd time)
abnormal branching pulmonary artery
compressing bronchi.
Docs are trying but we can tell they’ve not come across a case like him before. They call him a “textbookcase”. He now vomits all the time. We give hima diretic to reduce water retention which causes his potassium levels to flucuate which in turn requires him to then be given potassium.
Poor baby has been through a lot. We search in hope to find a fix; at a minimum, improve his quality of life. At the very least, we’d like to better understand the combined anomolies in hopes to serve as a better advocate for him.
Mary
#5 by Bindu at February 15th, 2010
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Hi,
Excellent work JC. Keep it up.